“But you don’t look sick” Carly & Jason’s Story

“But you don’t look sick” Carly & Jason’s Story

Name: Carly  Your Invisible illness(es):  Endometriosis, Ovarian cysts and Fibroids Explain about your journey, symptoms and how long a diagnosis took: Diagnosis time was 3 years. 6 years ago, I had irregular periods, clotting and intense pain where I ended up in the ED (Emergency Department), it was put down to coming off the pill [...]

“But you don’t look sick” Soph’s Story

“But you don’t look sick” Soph’s Story

Name: Sophie, 20 Your Invisible illness(es):  Endometriosis and IBS Explain about your journey and how long a diagnosis took: At the age of 19 the symptoms of my Endometriosis (Endo) kicked in, it took me one-year, countless A&E visits, 2 surgeries, people constantly dismissing me and a whole load of tears to get my diagnosis. [...]

“But you don’t look sick” Rozzie’s Story

“But you don’t look sick” Rozzie’s Story

Name: Rozzie Your Invisible illness(es): Intestinal Dysmotility (is the term used to describe a variety of symptoms that occur when the gut does not work properly at moving its contents along). I experience sometimes CIPO which is chronic intestinal pseudo obstruction. Gastroparesis (is a disease in which the stomach cannot empty itself of food in a normal [...]