“But you don’t look sick” Soph’s Story


Sophie, 20

Your Invisible illness(es): 

Endometriosis and IBS

Explain about your journey and how long a diagnosis took:

At the age of 19 the symptoms of my Endometriosis (Endo) kicked in, it took me one-year, countless A&E visits, 2 surgeries, people constantly dismissing me and a whole load of tears to get my diagnosis. I was diagnosed in March of 2020 with endometriosis after a year of agony. I have had 3 surgeries, pills, coils and all sorts to try and help manage my symptoms.

My diagnosis took one year and two surgeries- the first was done by a non-specialist who said I didn’t have Endo, the second one was done by a team of specialists who found lots of endo.

What are your symptoms?

My symptoms include severe pelvic pain, shoulder pain, nausea, pain with sex, dizziness, leg pain, bloating, irregular bleeding and chest pain.

What does invisible illness mean to you?

Invisible illness means being misunderstood, being told there is nothing wrong with you when there really is. Having said that, my illness has also allowed me to meet countless incredible people.

Has your understanding of an Invisible illness changed over time?

My understanding of invisible illness has changed so much, since becoming unwell I have learnt how much someone can suffer behind closed doors and that you truly never know what someone has going on in their life.

The worst part of having an invisible illness?

I wish others understood that sometimes we just need someone to listen to us and when we cancel plans last minute etc. It isn’t because we don’t want to spend time with you, it’s because we are physically too unwell.

The best part of having an invisible illness?

The best thing about having an invisible illness is becoming a more empathetic person and being even more grateful for the little things in life!

What do you feel is the biggest misconception?

With Endometriosis people think it’s just a bad period but it is not. It is a condition all on its own when tissue similar to the lining of the womb grows in other places.

Hopes for the future?

I hope to feel fulfilled both in my career whatever that may be and in my personal life. Having children is something I have always wanted so I really hope I am able to. I also want to continue empowering other people in their lives.

Instagram: @sophsendo

Esty: Soph’s Prints

chronic illness endometriosis health and wellness Invisible illness

1 Comment Leave a comment

  1. My name is Carrie I am 30 suffered with severe pains ever since the age of nine, unfortunately when I was younger I missed a lot of school and work due to being so unwell, spending most of my time curled up on the couch crying and using heat and medication and still to this day I am medicated heavily and still visiting hospital quiet frequently.


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