“But you don’t look sick” Carly & Jason’s Story

“But you don’t look sick” Carly & Jason’s Story

Name: Carly  Your Invisible illness(es):  Endometriosis, Ovarian cysts and Fibroids Explain about your journey, symptoms and how long a diagnosis took: Diagnosis time was 3 years. 6 years ago, I had irregular periods, clotting and intense pain where I ended up in the ED (Emergency Department), it was put down to coming off the pill [...]

“But you don’t look sick” Soph’s Story

“But you don’t look sick” Soph’s Story

Name: Sophie, 20 Your Invisible illness(es):  Endometriosis and IBS Explain about your journey and how long a diagnosis took: At the age of 19 the symptoms of my Endometriosis (Endo) kicked in, it took me one-year, countless A&E visits, 2 surgeries, people constantly dismissing me and a whole load of tears to get my diagnosis. [...]

“But you don’t look sick” Rozzie’s Story

“But you don’t look sick” Rozzie’s Story

Name: Rozzie Your Invisible illness(es): Intestinal Dysmotility (is the term used to describe a variety of symptoms that occur when the gut does not work properly at moving its contents along). I experience sometimes CIPO which is chronic intestinal pseudo obstruction. Gastroparesis (is a disease in which the stomach cannot empty itself of food in a normal [...]

“But you don’t look sick” Beth’s story

“But you don’t look sick” Beth’s story

Name: Elizabeth or Beth!  Age: 23 Your Invisible Illnesses: My illnesses: Endometriosis, Coeliac’s Disease, Asthma (I’m in the middle of being diagnosed with gut health problems, acid reflux, poor digestion etc!) My focus will be on Endometriosis. Your Journey  & diagnosis time: It took about 10 months after my first op but I’d suffered in silence [...]

“But you don’t look sick” Andy’s Story

“But you don’t look sick” Andy’s Story

Name: Andy Who has an invisible illness? My wife, Natalie/Nat (Blog owner) What invisible illnesses does your partner have? Endometriosis, Fibromyalgia, Hypermobility & IBS. Had you heard of these things before your partner introduced you to them? Other than IBS, I’d never heard of the main illnesses until Natalie started researching them before her diagnosis'. [...]

“But you don’t look sick” – Natalie’s Story

“But you don’t look sick” – Natalie’s Story

Name: I’m Natalie, 29 and the owner of this blog page. Your Invisible illness(es): My invisible illnesses are Endometriosis (Endo), Fibromyalgia, Hypermobility & IBS (This blog will focus predominantly on Endo) Explain about your journey and how long a diagnosis took: Like a lot of people with Endo, my diagnosis was not easy to come [...]

“But you don’t look sick” – The Series

“But you don’t look sick” – The Series

Hi my Angels, A phrase I often gravitate back towards is "but you don't look sick", it's a common phrase I've personally heard from a lot of people and guess what ... it turns out I'm not alone! For many people who have Invisible Illnesses, often find that they're facing stigma from people not physically [...]

I have a surgery date, round four…

I have a surgery date, round four…

More than a decade of fighting for a diagnosis, and it's safe to say my life has never been the same since getting it. A diagnosis didn't fix much, other than it aided my mental health; I've said it before to finally have a name, a condition and medical practitioners believe you is one of [...]