Name: Elizabeth or Beth! Age: 23 Your Invisible Illnesses: My illnesses: Endometriosis, Coeliac’s Disease, Asthma (I’m in the middle of being diagnosed with gut health problems, acid reflux, poor digestion etc!) My focus will be on Endometriosis. Your Journey & diagnosis time: It took about 10 months after my first op but I’d suffered in silence…
Name: I’m Natalie, 29 and the owner of this blog page. Your Invisible illness(es): My invisible illnesses are Endometriosis (Endo), Fibromyalgia, Hypermobility & IBS (This blog will focus predominantly on Endo) Explain about your journey and how long a diagnosis took: Like a lot of people with Endo, my diagnosis was not easy to come…
Hi my Angels, A phrase I often gravitate back towards is “but you don’t look sick”, it’s a common phrase I’ve personally heard from a lot of people and guess what … it turns out I’m not alone! For many people who have Invisible Illnesses, often find that they’re facing stigma from people not physically…
More than a decade of fighting for a diagnosis, and it’s safe to say my life has never been the same since getting it. A diagnosis didn’t fix much, other than it aided my mental health; I’ve said it before to finally have a name, a condition and medical practitioners believe you is one of…
For over a year I’ve been using mobility aid, sometimes just on outings other times indefinitely. I’ve learned that accepting help from mobility aid, is the best way I can remain independent … even on my worst days. I stopped driving back in February, and it’s the longest I’ve not been behind a wheel in…
Following on from my diagnosis with Endometriosis, pain management became a key focus and I soon found myself buying storage units to contain all the medication I was now required to take. Each new prescription came with a three month supply of medication, so we are talking hundreds of tablets. I hated the idea of…
My mum tried to conceive me for five years, if we go back to the late 80s, she didn’t get a great deal of help and the help that was offered could have had grave consequences. My parents conceived me naturally and I joined my older brother to complete our little family. I always remember…
For so long I’ve been against medication, very much so on a personal level. I’m very mindful of everything that goes into my body, and medication is no exception. Having witnessed my mum’s fight with terminal illness, I learned a lot about medication and the pros and cons. How most medications have side effects that…
My life is a perpetuating cycle of pain, on a daily basis. It’s something I don’t think I’ll ever be able to adjust to, because no two days are ever the same. I exist with chronic pain, daily – and it means I’m short on energy, as my body constantly tries to combat the pain…
Hindsight is an odd thing, but really most of us only understand something properly once we’ve experienced it. It’s something I’ve established as a blessing as much as a curse, because when you know better you do better ….but you also wish you knew better in the first instance. As I advocate more and more…
